Be careful what you ask for

FarAwayLover

New member
Short version - My boyfriend from high school, Jacques, contacted me last fall, but we cut off contact to save his marriage. What I wanted was for Jacques’ wife Artemis to be OK with my being in touch with him, and maybe my being able to see him. To give him a real hug rather than a virtual one.

At this point she’s saying he would love to hear from me, and, while we haven’t discussed it, a visit seems like it’s not out of the question.

But the way we got there is that he has a tentative diagnosis of frontotemporal dementia, or frontotemporal degeneration. I was instrumental in urging Artemis to please get some help for Jacques - that something was clearly wrong. He had been acting somewhat strangely, but the clue that something was really wrong was that he was telling her (and me) that he and I had had a child and that he had found her. He insisted in spite of my denials, and changed his story to say he had learned about her from my husband, Clyde. I wrote to Artemis and said to _please_ get Jacques some help.

So now, she says, she’s keeping me updated ‘since despite everything else, you are an old friend who cares about him (not to mention being the mother of his "child.”’ And ‘the Jacques you and I knew is gone, apparently never to return.’

And she told me he would love to hear from me.

So I got what I wished for, but certainly not in the way I was picturing it!

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Longer version -

Back last fall, my high school boyfriend, Jacques, got in touch with me after having been out of contact for 38 years. He’s been married for over 30 years, and at this point my husband, Clyde, and I have been married for 35 years. Jacques says he never stopped loving me, and I either fell back in love with him or decided that maybe I had never really stopped loving him. (If I’d known about polyamory in my 20’s, maybe my life would have been very different.)

This is described in more gory detail in what was an intro post, that got moved to the Relationships Corner.
http://www.polyamory.com/forum/showthread.php?t=65281

I said that he had found our breakup traumatic. I didn’t actually think of it as a breakup - I just felt I had moved on. We were in different places geographically, and it was hard to keep up communication in the days before cell phones and e-mail. He lived with family, so calling after 11 pm wasn’t an option (the time of cheap phone calls). The last time I saw him, he came out to visit me in Boston in the spring of 1975. I had moved in with a boyfriend, but had a room in another apartment (to keep my parents happy). That’s where we stayed during his visit, and I apparently made him sleep on the floor. We definitely didn’t have sex, even though we had done so over Christmas break at home.

I hadn’t been looking for polyamory, so it wasn’t something Clyde and I had ever discussed. At least we had heard of it before, mostly through science fiction fandom circles. Clyde had to be reassured that loving Jacques didn’t mean I had any less love for him. And, since Jacques is on the opposite coast, he didn’t seem like much of a threat. On the other hand, Jacques’ wife, red-headed Artemis, flipped and threatened divorce. We cut off contact and they went into counseling. Last contact was in January.

Parenthetically, although Artemis goes my her middle name of Artemis, her first name is actually the same as mine. Scary! Particularly since Mandelbrot isn’t a very common name. I have no idea when Jacques found this out. It’s one of the many things I haven’t gotten around to asking

Fast forward to August. We had figured out last fall that Minneapolis was the place to see each other if we wanted to meet up. He doesn’t go back to our home town anymore, but both of us have family in Minneapolis. I had promised that I would let him know when we were traveling to there. It was hard getting our schedules straight, but Clyde and I finally settled on some dates, and I sent e-mail to that effect, giving a few week’s notice. In 4 directions - to me, Clyde, Jacques, and Artemis. Didn’t want any accusations of going behind someone’s back. Jacques said he’d check with relatives about staying with them, that he might get some blow-back from Artemis - he didn’t know how to defuse that. Clyde and I were, like WTF!? Hasn’t he learned that he needs to communicate with her?! I replied that it was good to hear from him, but I wasn’t hopeful given that Artemis didn’t seem to have been in on writing/discussing the reply. But I’d have my fingers crossed.

Got curt e-mail from Artemis saying I could uncross my fingers, they weren’t going to Minneapolis.

I figure, OK, end of story. Then I get an e-mail from him the next Monday. Sounded _very_ weird. Claimed to have met a woman on the phone (in a phone call _he_ had initiated to U Penn) who is the 29-year old daughter of me and boyfriend. She has 2 kids, one named after me, one after him, both in private school. He’s all ready to fly out, meet the family, offer to pay the private school tuition, and buy her 29 years worth of birthday presents. WTF? I called and said someone was pulling a cruel hoax on either him or me (verifying that e-mail had indeed come from him).

The next day’s story was, no I was right, that 29-year old couldn’t be our daughter (the last time I saw him was 39 years ago, remember?) Instead, he and I have a 41-year old daughter with a different name, and he knows about her because Clyde told him about her. Right…

So I compose a draft to Artemis, saying that Jacques appears to have flipped Is he on some new meds? Please get him some help, and here are my phone numbers. Clyde and I both tell Artemis that there is no daughter. So then Artemis realizes that something is actually really wrong with Jacques, takes him to a psychologist and psychiatrist and his GP (the last visit was already scheduled). The psychiatrist immediately put him on a medical for 6 weeks.

Since then I have heard from Artemis that Jacques had an MRI that showed significant shrinkage of his frontal and temporal lobes. Combined with his behavioral and personality changes, the psychiatrist gave a tentative diagnosis of frontotemporal dementia.

And Jacques would love to hear from me.

I am apparently, at least for the time being, no longer the enemy.

So now she’s OK with my being in contact with him, but I would have _never_ wanted it to happen this way!

And I’m also thinking that it’s just chance that when I wrote to Jacques was around the time things started going really wonky in his brain. Or else maybe I would have never heard about Jacques being sick, because _Artemis_ certainly wouldn’t have gone out of her way to tell me if Jacques flipped in some way that didn’t involve me.

I’m guessing that maybe a blog would have been a better place to continue this, but I wanted to put this out there.

Thanks for “listening”.

FAL

--------------------------------

M - Me - Mandelbrot - female, 59 - _trying_ to figure out if I'm poly
Clyde (previously B) - 57 - my husband for over 35 years
Jacques (previously JP) - 59 - my high school boyfriend, newly appeared in the picture last fall after 38 years; very long distance; haven't actually seen him
Artemis (previously A) - 66? - Jacques' wife of over 32 years
 
Hi FarAwayLover,

I know it's been awhile since I last got caught up on your situation, but I remember your story well. I'm very sorry to hear about Jacques' condition. Dementia -- and anything like it -- is just an awful thing for anyone to get. It's a sad, sad way to go. I speak from experience as I lost my wife to dementia a little over a year ago. Doesn't mean there's no hope or cure for Jacques, but it's a grim diagnosis.

I hope Artemis will let you see him (and soon). Right now is a time when he still remembers you well and the visit would be very meaningful to him. But I realize that that ball is in Artemis' court now.

If he keeps going downhill (as dementia is prone to do to its victims), Artemis will find it increasingly hard to take care of him. She might want to start thinking about what to do when the job becomes too much. When it becomes a 24/7 job that even multiple people can't handle in their spare time. I don't mean to be a harbinger of doom, but I just know that dementia is hard on everyone. Plans must be made.

I appreciate your update, wish you well, and offer my sympathies and condolences.

Sincerely,
Kevin T.
 
I am so sorry. Dementia is not an easy dx to have to deal with for anyone involved. :(

I'm not sure what your desired outcome is at this point? Continue to stay in touch? Send cheerful letters to Jacques while he can still understand them? Encourage Artemis in caregiver-ing Jacques? Something else?

It's a lot to take on board. It's ok if you need time to digest this news.

Galagirl
 
I speak from experience as I lost my wife to dementia a little over a year ago. Doesn't mean there's no hope or cure for Jacques, but it's a grim diagnosis.

I hope Artemis will let you see him (and soon). Right now is a time when he still remembers you well and the visit would be very meaningful to him. But I realize that that ball is in Artemis' court now.

...

I appreciate your update, wish you well, and offer my sympathies and condolences.

Sincerely,
Kevin T.

Kevin,

Thanks for your support. I went back and read your blog. I'd forgotten that LV passed away only last year. You said that Brother Husband and Snowbunny noticed changes in her as far back as 2004. So you were dealing with this for 9 years!

I have a friend who is a family practice physician. He's my go-to person for frank answers about medical issues. He says that whether I visit or I don't - either way I'll have regrets.

That said, I _would_ like to visit. I don't know what to think right now. I haven't heard from Artemis since September 8th, when she sent me the message about the tentative diagnosis. She was immediately deleting the message, letting Jacques tell me in his own way. And I haven't heard from Jacques since he wrote and just said there was "some shrinkage" of his frontal lobe. So I don't know how much denial he's still in.

I can't broach the subject of future plans without letting on that I know the diagnosis is worse than he's letting on. They share a single e-mail account - it's really hers, but that's all he's ever used at home, He did all of his own e-mail from work. My doctor friend thinks she might want to get an additional gmail account, but I'll have to get her on the phone to suggest that, unless she confirms that Jacques is only looking at e-mails that she directs him to.

I'm about ready to call anyways to find out their thoughts about visiting. I've asked a couple of times, but gotten no response. Not that I've heard anything else, either.

I know she doesn't owe me anything. But back when the nutty messages started, before she got him to a psychologist, I said, 'If you have the time and inclination, the occasional update would be appreciated.' And her reply included, 'I will also keep you informed about this, since despite everything else, you are an old friend who cares about him (not to mention being the mother of his "child.")' So I guess she kind of has a sense of humor in this as well.

Thanks for "listening". I'll let you know when I hear more.

FAL

--------------------------------

M - Me - Mandelbrot - female, 59 - _trying_ to figure out if I'm poly
Clyde (previously B) - 57 - my husband for over 35 years
Jacques (previously JP) - 59 - my high school boyfriend, newly appeared in the picture last fall after 38 years; very long distance; haven't actually seen him; tentatively diagnosed with dementia
Artemis (previously A) - 66? - Jacques' wife of over 32 years
 
I am so sorry. Dementia is not an easy dx to have to deal with for anyone involved. :(

I'm not sure what your desired outcome is at this point? Continue to stay in touch? Send cheerful letters to Jacques while he can still understand them? Encourage Artemis in caregiver-ing Jacques? Something else?

Hi GG,

Thanks for your condolences.

My desired outcome is all those things. I'd like to stay in touch and hopefully even visit. I've been sending chatty e-mails about once a week. And gotten nothing back. (See my previous post - reply to Kevin.) I have no idea what a good frequency is. I could easily send something daily, but my therapist thinks that would be too much and annoy Artemis. I'd like to support her in any way that I can. But we're essentially at opposite corners of the country. Last winter Clyde laughed - he saw a picture of our high school chorus in the yearbook. I was in the lower left corner and Jacques was in the upper right. As far away as we could possibly have been. That's what it feels like now.

I have no idea who they've told. When I read up on the condition, some people say it can take quite a while to get a firm diagnosis. They/she may be reluctant to share what isn't definite. So she may be getting less support than she would otherwise. But she'll have to ask for help. I've already offered. And I don't really know what I can actually do.

Thanks again.

FAL

--------------------------------

M - Me - Mandelbrot - female, 59 - _trying_ to figure out if I'm poly
Clyde (previously B) - 57 - my husband for over 35 years
Jacques (previously JP) - 59 - my high school boyfriend, newly appeared in the picture last fall after 38 years; very long distance; haven't actually seen him; tentatively diagnosed with dementia
Artemis (previously A) - 66? - Jacques' wife of over 32 years
 
It sounds like you're already doing pretty much everything you can do. The ball is in Artemis' court.

I think people with dementia tend to be in denial about it. Possibly because facing the reality is just too embarrassing and frightening.

Just a reminder for us all to live life to the fullest while we can, I suppose.
 
Definitely dementia

So, I’ve been sending e-mails periodically. Chatty things about what’s going on with life. Occasional requests to please be able to come and visit. Silence. Well, I figured that Artemis had a lot on her plate, and if no one was telling me to actually _go away_, I was going to keep writing. But I will admit the the frequency tapered off.

Six months after I last heard from Artemis and Jacques, I get an e-mail response from Artemis. Jacques is out on disability, the state took away his driver’s license due to the dementia diagnosis, he’s following her around like a puppy. It takes me a week, but I get up the nerve to pick up the phone and call. It’s confusing at first because, remember, she has the same first name as me, but goes by her middle name. So when I announce myself, she thinks it’s someone asking for her. We finally get _that_ straightened out!

After we talk for a while, she asks if I want to talk to Jacques. Sure! During the conversation I ask about being able to travel, and he says, Oh I didn’t tell you, I have FTD. So that got confirmed. I hadn’t actually heard, but had assumed…

Kevin and Gala Girl were kind enough to respond the last time I wrote about Jacques. It’s not clear to me that anybody else is going to be interested. I’m going to take this off to blog land - seems like a better place for it.

"My boyfriend has dementia"
http://www.polyamory.com/forum/showthread.php?t=73949

But right now this is as much as I’ve written for the blog, as well.

FAL

--------------------------------

M - Me - Mandelbrot - female, 60 - _trying_ to figure out if I'm poly
Clyde (previously B) - 57 - my husband for over 35 years
Jacques (previously JP) - 59 - my high school boyfriend, newly appeared in the picture fall of 2013 after 38 years; very long distance; haven't actually seen him; diagnosed with frontotemporal lobe dementia
Artemis (previously A) - 67? - Jacques' wife of over 32 years
 
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I visited the new blog, and will continue to follow your story there.

Kind of a sad situation. :(
 
I see that the dx was confirmed.

My thoughts and prayers to all of you as you navigate next steps.

Hang in there!
Galagirl
 
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