I think you might be working yourself up into anxiety mode.

Blue is mine.
I mean, then what do I do? I don't want to stress him out because I care about him. But yes, it is important to me. I don't know that I could handle never having PIV (with this partner).
That
bold part is about willingness to me.
No, you don't know if you can handle it permanently right now. Because you've not been in a position where you had to try to find out if you COULD handle it long term. Guess what though? You ARE handling it right now in the short therm and you feel these things:
- I don't want to break up with him.
- I am developing an emotional connection to him even without the PIV.
- I am enjoying our relationship for what it is right now though.
So far it appears he's willing to get a health check up.
- So are you willing to risk it and find out if you can or cannot handle it long term after success short term?
- Or are you more willing to just not go there and call it quits now?
That's a very personal question only YOU can answer. You seem to want people to tell you what to do. YOU tell you what to do.
I meant if I broke up with him now, and the problem was fixable, that I'd be missing out on something awesome.
How do you know it wouldn't go like this -- the problem is fixable and you miss out on something horrible because he has some secret nasty habit?
I think you might be jumping to conclusions about the future (that it would have been awesome) and working yourself up in the present because you think you will miss out on fun.
How about not doing that "jump to conclusions" thinking and being PRESENT in your present?
It may very well be fun in future, but get through TODAY first. Esp since thinking about future is cranking you up today. You seem anxious.
Try to RELAX.
How do I handle this to make it as easy on him as possible in the meantime?
If you are fretting at him, stop talking about it and let him get through his check ups fret-free. He seems aware of your concern, so no need to beat him over the head with it.
Vent here on the boards or in a journal. Listening to a partner fret isn't going to make HIS journey any easier.
Kvetch OUT not IN. I'm not saying you can't talk to your partner about things that concern you, but giving it a "time out" for a few weeks so he can get through his health care stuff in peace isn't NEVER talking about it. Could give the man a break. Comfort in,
kvetch out during this health procedure time.
If you are thinking all the horrible that could happen -- try to stop thinking like that. Catch yourself doing "voice of doom" and pick up on the positives instead of looking for negatives.
EX:
- Yes,we can't have PIV right now. But he's seeking health care so hopefully it will be resolved. It's work in progress right now.
- Yes, we can't have PIV right now. But we could use toys, fingers, etc. I can also have PIV with my other partners.
- Yes, we can't have PIV right now. And if it turns out permanent health condition -- I might have to make a final decision at some future point in time about staying in this relationship or not. But for the present time we can enjoy each other's company while he's gathering his health answers.
You seem stuck on what you can't do, and are not focusing on what you CAN do. You do not state what you are doing about this either:
He's only 28 years old, so no, I hadn't expected this at all. I've never met a man who didn't get hard from a blow job. It's been hard on me, too. It makes me feel like he's not attracted to me even though he assures me that he is. I haven't voiced that one because I know it's my issue.
If him having an erection is how you define you being "desired by him" at this time? That could be playing into it here. How will you know he desires you in a long term permanent no-PIV thing if that's how YOU measure your desirability? Is him telling you verbally enough? Something else? What will you accept so that you can BELIEVE he desires you?
I just know I'd be happier if we could have some really good, connective sex.
Please define what "good connective sex" is for you. You state you enjoy other sex share with him that is not PIV. So to me there seems to be other good connective sex happening.
HTH!
Galagirl